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- Proquest, Ingenta, CSA, Ovid from 2001, Gale, Wiley from 1995, and Rcgp
Importance of literacy for self-reported health-related quality of life: a study of boys with haemophilia in Brazil.
We developed a brief screening tool in the form of two stories, at a grade 3 reading level, followed by comprehension questions. We applied the screening test to a sample of haemophilic boys between the ages of 7 and 13 years to assess their literacy. The data were analysed to determine the best cri...
Pharmacokinetics and prophylactic use of FEIBA(®) in a child with severe congenital factor X deficiency and recurrent spontaneous intracrani...
Acquired factor X deficiency in systemic amyloidosis: management of two cases.
Health-related quality of life in patients with haemophilia and inhibitors on prophylaxis with anti-inhibitor complex concentrate: results f...
Patients with haemophilia A and inhibitors are at high risk for severe bleeding, progression of joint disease and deterioration of health-related quality of life (HRQoL). To determine the impact of prophylaxis with an activated prothrombin complex concentrate (aPCC) on HRQoL, HRQoL was assessed usin...
Quality of life in paediatric haemophilia A patients.
Novel coagulation factor concentrates: issues relating to their clinical implementation and pharmacokinetic assessment for optimal prophylax...
We report key issues relating to the PK assessment of new coagulation factors and include suggestions on the implementation of PK data to optimize therapy. As both inter- and intra-individual variability in factor half-life have been reported, we suggest that frequent PK assessments should be conduc...
What should men living with severe haemophilia need to know? The perspectives of Canadian haemophilia health care providers.
Haemophilia is a complex disease to manage. Home-based management of haemophilia has placed greater responsibility for disease management on individuals with haemophilia, heightening the individual's need for knowledge, particularly among individuals with severe haemophilia. The aim of this study wa...
The effect of labour on the coagulation system in the term neonate.
The coagulation system of the foetus is markedly different from that of adults. To assess the influence of maternal age, mode of delivery and intrapartum events, and foetal gender and weight on the foetal coagulation system. Cord blood was collected from 154 healthy pregnant women, with gestational...
Iron deficiency and fatigue in adolescent females with heavy menstrual bleeding.
We utilized the Ruta Menorrhagia Severity Score. We investigated the symptoms of fatigue using the Fatigue Severity Scale. We evaluated possible predictors of ferritin level (age, body mass index, fatigue scores and Menorrhagia Severity Score) using generalized linear models. A total of 48 adolescen...
Assessment of self-esteem levels of Turkish patients with severe haemophilia A: Ankara Hospital experience.