Abstract
Employed adults valued future genetic testing as being important to their well-being and strongly preferred reconsenting for future use of stored tissue. These data provide a baseline to measure potential changes in workers' attitudes since the passage of the U.S. Genetic Information Nondiscriminati...
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PMID: 19405873
PDF is available here.
Abstract
The allegations of negligence against Congress were that there was a failure to follow up the patient's diagnosis and treatment and, in particular, a failure to follow up the recommended cholesterol test and failure to follow up the referral by Dr Boffa to a specialist physician for assessment of su...
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PMID: 19458804
PDF is available here.
Abstract
The practice manager contacted the general practitioner's medical defence organization for advice. The practice manager was told that, from a legal point of view, there was no obligation on the practice to utilize any reminder system for routine investigations, although the practice may consider tha...
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PMID: 18704217
PDF is available here.
Georgina Chan,
Fern Goh,
Timothy Hodgson,
Erica Hsu,
Deborah Johnstone,
Jasen Ly,
Timothy Platt,
Edrich Rodrigues,
Wendy Tsai,
Phil Hider,
Andrew Gray and
John Highton
Abstract
According to the guidelines only 40% of patients were followed up within the recommended intervals. Groups A and B (76.9% and 70.6% respectively) had a significantly greater proportion of patients with follow-up at variance to guideline recommendations compared to groups C and D (50% and 45.3% respe...
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PMID: 18535644
PDF is available here.
Abstract
We argue that current rationales for a duty of disclosure do not form an adequate basis for an ethical imperative. We review policy guidance and scholarly commentary regarding the duty to communicate the results of biomedical, epidemiological and genetic research to research participants and show th...
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PMID: 18316466
PDF is available here.
Abstract
We examined retrospective and prospective studies, randomised controlled trials, and meta-analyses attempting to identify the optimum follow-up protocol. There is widespread diversity of follow-up policies for colorectal cancer. Follow-up of colorectal cancer does not have a negative impact on Quali...
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PMID: 17448977
PDF is available here.
Abstract
We surveyed both the literature and the ethical guidelines using selective keywords. We then analyzed our data using a qualitative method approach and singled out countries or policies that were representative of certain positions. From our findings, we conclude that at the international level, ther...
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PMID: 16868560
PDF is available here.
Abstract
OBJECTIVE: Patient information is a topical subject. The aim of this review is to present the rare studies concerning the degree of patient information on the cardiovascular and renal risks of the non-steroidal anti-inflammatory drugs and to suggest some recommendations on this subject. METHODOLOGY:...
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PMID: 17870556
PDF is available here.
Abstract
The options for dynamic reanimation of the paralyzed face must be examined in the context of several patient factors, including age, overall health, and patient desires. The best functional results are obtained with direct facial nerve anastomosis and interpositional nerve grafts. In long-standing f...
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PMID: 16832180
PDF is available here.
Abstract
Although social and ethical issues related to the storage and use of biologic specimens for genetic research have been discussed extensively in the medical literature, few empiric data exist describing patients' views. This qualitative study explored the views of 26 female breast cancer patients who...
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PMID: 16650074
PDF is available here.
Abstract
Case histories are based on actual medical negligence claims, however certain facts have been omitted or changed by the author to ensure the anonymity of the parties involved. Many general practitioners are concerned that the law places all of the responsibility for follow up on to the GP and ask: '...
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PMID: 16642244
PDF is available here.
Abstract
E-mail follow-up after SAH is feasible and for patients acceptable, but the proportion of patients with no or with changing e-mail address is considerable. The validity of the responses via e-mail has to be assessed in further studies.
Copyright (c) 2006 S. Karger AG, Basel....
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PMID: 16490948
PDF is available here.
Abstract
We propose a result-evaluation approach that assesses the expected information and the context of the study in order to decide whether results should be offered. According to this approach, the analytic validity and the clinical utility of a specific result determine whether it should be offered rou...
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PMID: 17085395
PDF is available here.
Abstract
We believe that primary, single stage, lower urinary tract reconstruction in children with severely compromised or nonfunctioning renal moieties damaged by ureteroceles is superior to upper urinary tract ablative surgery, successfully correcting the obstructive or refluxing pathology with minimal mo...
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PMID: 15592074
PDF is available here.
Abstract
To primarily repair a series of radial forearm flap donor defects, a total of 10 bilobed flaps based on the fasciocutaneous perforator of the ulnar artery were designed at the Chang Gung Memorial Hospital in Kaohsiung in the period from January of 2002 to January of 2003. All patients were male, wit...
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PMID: 15060347
PDF is available here.
Abstract
As research in behavioral genetics uncovers the genetic contribution to human behavior, it will undoubtedly further our understanding of normal human variation in many behavioral traits, such as personality, intelligence, and sexuality. This research also shows great potential for the diagnosis, tre...
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PMID: 15341045
PDF is available here.
Abstract
Population-based genetic research, including genetic epidemiology, shows tremendous potential to elucidate the role of genes as causal factors in complex and common human diseases. Like all research with human subjects, full realization of these benefits requires careful attention to its ethical con...
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PMID: 15341044
PDF is available here.
Abstract
We discuss the difficulties of an informed consent model for future ineffable uses of genetic data. We argue that variations on consent, such as presumed consent, blanket consent or constructed consent fail to meet the standards required by current informed consent doctrine and are distortions of th...
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PMID: 12513704
PDF is available here.
Abstract
Express denials of access to genetic research results are being drafted into consent instruments. Some commentators suggest that the principle of beneficence can justify such a denial of access. This paper provides an ethical and legal critique of the use of consent instruments to disclaim responsib...
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PMID: 12666671
PDF is available here.
Abstract
The legal and ethical issues raised by new research uses of previously collected human tissues and health information are increasingly important to genetics research. This Article discusses and criticizes current positions on such uses, including the recent report of the National Bioethics Advisory...
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PMID: 12664910
PDF is available here.
Abstract
To facilitate discussion, this paper describes various types of collections of specimens, their uses in research, types of identifiers, requirements for informed consent, third-party access to samples, recontact, and controversial ethical and social issues. There is need for public opinion research...
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PMID: 11787507
PDF is available here.
Abstract
Research that identifies genes useful in the prevention and treatment of disease will require access to biologic samples and medical records protected by traditional notions of privacy and confidentiality. Resolving conflicts between privacy and genomic research will require articulating the ethical...
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PMID: 14621715
PDF is available here.
Abstract
More than 80% of the respondents said they wanted to be notified and would want to be notified if there were another recall. On initial receipt of the notification about two-thirds of the respondents had been anxious, fearful or angry. There was no one method of conveying the information that suited...
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PMID: 9805022
PDF is available here.
Abstract
Should Recipients who have received Blood from a person who developed Creutzfeldt-Jakob disease be notified, even though there is no proof the disease will be transmitted? Does notification simply cause unnecessary anxiety? Two recipients explained their polar-opposite positions during a recent Heal...
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PMID: 9805032
PDF is available here.
Abstract
This article explores the ethical concerns and protections that may be required when individually identifiable data originally collected solely for clinical or administrative purposes are used in research or evaluation. It asks the following broad question with respect to the interim policy develope...
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PMID: 11660540
PDF is available here.
Abstract
The issue of notifying people who have been exposed to blood products that have been associated with Creutzfeldt-Jakob disease (CJD) has arisen at a time when the Canadian blood system is under intense scrutiny. As a result, the Canadian Red Cross Society issued a recommendation to health care insti...
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PMID: 9371070
PDF is available here.